Wednesday, January 6, 2010

Another One

Actually, it's two another ones.... We've added another medication to Daughter's mix and she's had another seizure. This one was at the same time as she had it yesterday, so we (Far Away Sister, Psychiatrist's Nurse, and Pharmacist) are convinced it's the result of the cymbalta. I'm going to try splitting her dose-- half in the morning and half in the evening, to see if that will give her the benefit without the seizures.
Tomorrow morning she has an EEG. At least it's not a sleep deprived one. She's so exhausted from the seizures that there is no way I'd be able to keep her awake all night. I picked her up after today's seizure and took her with me to my appointment with the orthopedic surgeon. She was too anxious to stay at the workshop-- especially since she knew I was going to be on the other side of City and wouldn't be able to get to her quickly. I'm having carpal tunnel surgery February 4. She has slept since I picked her up-- in the car, on my shoulder in the waiting room, in the car again, and now in the chair beside me in my study.
One of the supervisors at the workshop told Daughter today that she scared her when she had the seizure. Now Daughter is feeling guilty. I assured her the seizures are not her fault. She liked the new neurologist, and he knows and works with the old neurologist who was 100 miles away. He added another medication to help control the seizures. It's one that supposedly doesn't cause drowsiness or dull her. I take her back to see him again in 8 weeks.
Far Away Sister reminded me that Mom's seizure last February was the beginning of the end for her. I had forgotten that, but I had been thinking of John Travolta's son who died during a seizure. I am trying to remember how I can see God's hand at work in this. Because I liked this neurologist when I saw him in December about my carpal tunnel, I scheduled an appointment with him for Daughter. I hadn't even been thinking about changing neurologists for her. She had her first seizure in years the day before her appointment with him. Because of that timing, we are able to make quick adjustments to medication and hopefully get the seizures to stop. If God can take of the little things like the timing of seizures and doctor appointments, I don't need to worry about dire outcomes. I can be confident that we will get these seizures under control quickly and Daughter will be fine. I just need to remind myself of that occasionally.


Anonymous said...

Deep breaths and prayers. It's a wonderful thought to focus on where God's hand is in the situation. Please try to remember, too, that people rarely die from seizures....I know it's hard when the "possibles" come to mind more than the "probables." Hugs and prayers for you both.

maeve said...

Is there an update??